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MaisyMoo
01-05-2017, 12:47 PM
Hi all.

I'm looking for some guidance and experience. Our nearly 14 year old Chow mix Maisy (affectionately Maisy-Moo, or Moomer) has been diagnosed with adrenal-dependent Cushing's. She started exhibiting symptoms this past spring, when her Alk-phos levels were a bit high. When we re-tested in early summer that level had doubled. Based on this, along with the appearance of some classic symptoms, we decided to schedule a LDDS test for early fall. Apparently there was an error on the clinic's side, so they asked to re-test for free in October. This was done and showed a pattern consistent with ADH.

To confirm, the vet suggested we take our girl to a specialist about 2 hours south for an ultrasound. We did so, and confirmed a tumor 3 cm x 3 cm on one of her adrenal glands, along with slightly enlarged liver. The second gland had atrophied and could not be seen. The specialist could not see invasion into the vena cava, but did not rule that out either.

We have already decided not to pursue surgery. We are most concerned with her quality of life, and are wondering whether it's worth trying trilostane. Her symptoms are not out of control yet - she drinks more than in her younger years, but does not empty the bowl. She acts ravenous, but this is something of a blessing, as she used to be an extremely picky eater. She pees more often, but doesn't wake or wet in the night. Her once-beautiful fluffy tail is now bald. The saddest symptom has been the wasting of her rear leg muscles. She can no longer get in the car unaided; she sometimes trips, and struggles a bit to stand from lying down. She cannot tolerate long walks - about 1 mile of flat terrain is her limit.

From what I've read, the muscle wasting is the last symptom to resolve, if it ever does. So I wonder how worth it it would be to go on trilostane, endure the repeated testing, which terrifies her, possible side effects, possible loss of appetite, etc. She is eating beautifully; I would hate to lose that. We just have to be careful not to keep any table scraps within reach, and bought a locking garbage can. She also has a small amount of arthritis in her lower back. I worry about pain, if/once cortisol is suppressed.

Mostly I'm just very conflicted. When they're young it's so easy; of course you try X, Y, Z medication or treatment. When she shattered her femur, we took her to an orthopedic surgeon for a plate and 8 screws. When she developed bladder stones, we had surgery to remove them. But now? How much is old age, versus the disease? How many trips of her panting and trembling at the veterinarian do we undertake? Trying to find the answer feels like cutting fog - useless, and exhausting.

judymaggie
01-05-2017, 03:15 PM
Hi and welcome to you and Maisy! (I love her nick-names. :D) The treatment vs. quality of life dilemma that you are in is, of course, a difficult one. You obviously have taken wonderful care of Maisy over the years and want to do the best thing for her. The goal of treatment with trilostane would be to lessen the symptoms you are seeing -- from what you have described, you are managing with the symptoms except for the muscle wasting.

You might want to consider interventions other than trilostane that might help Maisy with her muscle strength -- I am thinking of acupuncture and/or chiropractic treatments. These alternative treatments might make her more comfortable and improve her quality of life. I take my almost 14 year old beagle (who does have Cushing's and is on trilostane) every three weeks for a chiropractic treatment. I see definite improvement in strength and balance that lasts almost the three weeks. She is tired the rest of the day after her treatment but is much more willing to go for short walks after that. She hated acupuncture so have decided on just the chiropractic treatments.

Others will be along with their thoughts -- hang in there!

Harley PoMMom
01-09-2017, 11:12 PM
Hi and welcome to you and Maisy!

The decision to treat or not is a very personal one and we are here to support you with the one that you believe is best for Maisy.

I'm including this very thoughtful and beautiful reply from one of our administrators, Marianne, to a member that was contemplating the decision in treating or not.


Dear Lisa,

Welcome to you and Pepper, and WOW you've done a great job of keeping your girl healthy and happy up to age 17! First off, even though folks here do give various supplements to support healthy body functioning, there are no nonprescription drugs that will address the root cause of Cushing's and lower cortisol sufficiently to control the disease. So it really will take treatment with either trilostane (or Lysodren, the other Rx option) to control the Cushing's, assuming it truly is the cause of her symptoms. Having said that, at age 17, you may want to consider pluses-and-minuses of Cushing's treatment before rushing in to treat Pepper.

Cushing's is typically a slowly progressive disease but it does have the potential to cause systemic damage over time (from high blood pressure, vulnerability to pancreatitis and infections, high cholesterol, kidney damage, liver inflammation, etc.). So for a younger dog, I'd certainly recommend effective treatment so as to eliminate some of these risks, improve longterm quality of life, and allow the dog to live out his/her normal lifespan. However, for a dog of Pepper's age, immediate quality of life issues seem of paramount importance to me. And there are some trade-offs to treatment, especially for an arthritic dog since the arthritis may actually worsen as the cortisol level drops, necessitating the introduction of additional drugs to better manage the discomfort. Also, especially at the beginning, there can be numerous vet visits and blood draws which can be less than pleasant for a dog who's nervous at the vet (and also hard on the owner's pocketbook :o).

I don't tell you any of this to dissuade you from treating if you and your vet agree this is the best path forward for Pepper. But I do think you are the best judge as to how uncomfortable her current symptoms are to you both, and if they are not bothering Pepper all that much -- as I say, you may want to hold off on treating for the time being.

First things first, though -- as Lori says, it'll be great if we can take a look at those test results.

Marianne

I too agree that quality of life is the most important factor in making medical decisions for our furbabies and sometimes we have such a difficult time trying to find an answer. I want you to know that we are here for you and sweet Maisy and we will help in any way we can.

Hugs, Lori

molly muffin
01-09-2017, 11:25 PM
I just want to say welcome and hello to you and Maisy.

I think quality of life is the most important thing for any dog. Adrenal dependent cushings is very hard to have good control of but it could be that a small dose of trilostane would help. I wouldn't go with a very high dose though, as you really just want to get some control to help with other areas.

It is also possible as you mentioned that lowering cortisol could cause the arthritis to bother her more. So, another reason I would start low if you decide to go that route.

We will support you whatever you decide to do.